17th April is recognized as World Hemophilia Day around the world by the World Federation of Hemophilia (WFH). It is an day where the awareness about Hemophilia and other Bleeding disorders in stressed. It also serves to collect funds and attract volunteers for WFH which is more than 60 years old. April 17th was selected in honor of Frank Schnabel’s birthday, who founded the WFH in 1963.
Theme: Building a family of support
Hemophilia:
Hemophilia is a group of hereditary genetic disorders that impair the body’s ability to control blood clotting or coagulation, which is used to stop the bleeding when a blood vessel is broken. Hemophilia is the most common form of the disorder, present in about 1 in 5,000 – 10,000 male births. Hemophilia B occurs in around 1 in about 20,000 – 34,000 male births.
World Federation of Hemophilia (WFH):
The WFH which is an international non-profit organization, recognized by the World Health Organization (WHO), is dedicated towards improving the lives of people with hemophilia and other genetic bleeding disorders. They educate hemophiliacs and also they are working hard towards improving the medical treatment for the people affected, because around 75% of the people who are affected by any kind of bleeding disorders do not receive adequate treatment. The WFH which has its mark in 113 countries, has organizations and volunteers who give aid to people in these countries.